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VERSION:2.0
PRODID:icalendar-ruby
CALSCALE:GREGORIAN
X-WR-CALNAME:Genetic Legacies: Book Talk and Panel Conversation
X-WR-TIMEZONE:Pacific Time (US & Canada)
BEGIN:VEVENT
DTSTAMP:20260610T151011Z
UID:tag:localist.com\,2008:EventInstance_52065355355653
DTSTART:20260310T233000Z
DTEND:20260311T003000Z
DESCRIPTION:How does it feel to carry the genetic blueprint for a disease t
 hat has shaped your family's story—and may shape your future and that of
  your children? With the increasing statistics of people living with demen
 tia\, as well as the increased accessibility of genetic testing\, how do w
 e navigate this modern dilemma to live with or without our genetic knowled
 ge?\n\nJoin us for a panel conversation exploring this sensitive topic of 
 genetic legacies in the context of neurodegenerative disease. Inspired by 
 Mindy Uhrlaub's memoir\, Last Nerve\, this event will include a brief read
 ing from Mindy's book\, followed by a panel conversation featuring voices 
 from the intersection of lived experience\, neuroscience\, genetic counsel
 ing\, and art. Together\, we will discuss topics of shame\, stigma\, and g
 rief\; the process of genetic testing for biomarkers\; and future solution
 s. \n\nWhether you're navigating your own genetic legacy\, supporting some
 one who is\, working in healthcare or genetic counseling\, or simply inter
 ested in the ethical questions raised by modern genetics\, we hope you wil
 l join us! \n\nPanelists: \n\nMindy Uhrlaub\, author of Last Nerve and C9o
 rf72 gene carrier\, is a tireless advocate for genetic carriers of ALS and
  a founding member of End the Legacy. Her memoir chronicles her journey th
 rough genetic testing\, family loss\, and the search for meaning in the sh
 adow of inherited disease.\n\nJennifer Yokoyama\, PhD\, Mary Oakley Founda
 tion Endowed Professor in Neurodegeneration\, Associate Professor at the F
 ein Memory and Aging Center\, studies how genetic variation affects risk a
 nd resilience to neurodegenerative diseases. \n\nLiya Rabkina\, MSc\, gene
 tic counselor at the Fein Memory and Aging Center\, brings expertise in th
 e emotional\, practical\, and ethical dimensions of genetic testing and wi
 ll help us understand how people make choices in the face of uncertainty\,
  grief\, and family planning. \n\nCarissa Potter\, MFA\, visual artist and
  author\, transforms the human experience of connection\, grief\, and joy 
 in both small and large-scale visual narratives. Don't miss Potter's curre
 nt exhibition\, You Don't Have to Show Up\, featured in Gallery 190\, on v
 iew through April 3.\n\nCome early to enjoy Carissa's artwork in Gallery 1
 90 and stay afterwards for a book signing with Mindy! \n\nThis event is fr
 ee and open to the public. No registration required.
GEO:37.769348;-122.392197
LOCATION:Sandler Neurosciences Center\, Neurosciences Conference Center (NS
 CC)
SUMMARY:Genetic Legacies: Book Talk and Panel Conversation
URL;VALUE=URI:https://calendar.ucsf.edu/event/last-nerve-genetic-legacies
CATEGORIES:Fun & Recreation
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